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Thread: Finally! Some good news about my daughter.

  1. #511
    Registered User Rapid_Roy's Avatar
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    Quote Originally Posted by m0rbid45 View Post
    Roy, what about the possibility of using a track ball vrs a mouse?
    Good point.
    I had one of those MS EasyBall track balls, which was huge and had 1 click button. She chewed through the cord. You are on the right track though, I suspect it would be easier than a mouse at this point. I need to find the largest one possible though. I have not been back to the Special Needs Computer website, perhaps they have added something like that since last I checked.
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  2. #512
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    Not sure what the special needs site has. This one is about the biggest out there that I am aware of.

    http://www.kensington.com/kensington...use%c2%ae.aspx
    Mack McDonald
    Garland, Tx.
    04 1150 GSA

  3. #513
    Registered User redclfco's Avatar
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    Quote Originally Posted by Rapid_Roy View Post
    Good point.
    I had one of those MS EasyBall track balls, which was huge and had 1 click button. She chewed through the cord. You are on the right track though, I suspect it would be easier than a mouse at this point. I need to find the largest one possible though. I have not been back to the Special Needs Computer website, perhaps they have added something like that since last I checked.
    Roy,

    Dad should buy her an I pad, she deserves it. no mouse needed.

  4. #514
    Registered User Rapid_Roy's Avatar
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    Quote Originally Posted by redclfco View Post
    Roy,

    Dad should buy her an I pad, she deserves it. no mouse needed.
    Ewwwwwww!

    I found a Microsoft easy ball on Ebay for 20 bucks. That will work more bettah.
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  5. #515
    Registered User jgr451's Avatar
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    Hey RR,long time.My daughter too is still handicapped.Things could be worse all around huh?
    Sometimes,nothing is a real cool hand.

  6. #516
    Registered User Rapid_Roy's Avatar
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    Quote Originally Posted by jgr451 View Post
    Hey RR,long time.My daughter too is still handicapped.Things could be worse all around huh?
    Yes, I guess they could. I worry that she may not be self sufficient, and something might happen to my wife and myself. We know how to make her happy. I know parents worry anyway, but I want to worry about being late for Soccer practice or Ballet, not will she ever walk or talk again. I am afraid we will never get to that point.
    We have been trying to get her better for 9 years now, and will still keep trying.
    It wears us down, but giving up is unthinkable, and not an option.
    It is disheartening to see the light at the end of the tunnel moving further away at times.
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  7. #517
    Registered User Rapid_Roy's Avatar
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    Well, what a week. Rachael had a "procedure" done on Monday. They injected Botox into her hamstrings, as they are way too tight. They also injected phenol into her abductors, which are the muscles that keep the legs closed. Hers are overpowering the weaker muscles. She did ok, but we kept her home from school on Tuesday as well, as she did not sleep good, and my wife was up with her most of the night. It appears I also brought something home from the Hospital as well, and was sick for a few days. I went to work on Friday, because money makes the world go round, but my son had surgery for his sinuses that day. He is doing ok, but it is starting to hurt more today.

    We upgraded the TV in the Family room to one of those fancy LED ones as a family Christmas present, and our entertainment budget for the year. We don't get out much. Now, Rachael has a 46" "monitor" in the living room we can connect to the laptop, along with the new huge trackball. She better be able to see that!
    We are hoping it will engage her more, and force more hand to eye coordination.

    The caregiver is going to be with Rachael tonight, and the wife and I are going to go out and eat, so I guess things are about as good as they can get right now.
    I hope everybody has a great weekend.
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  8. #518
    Registered User Rapid_Roy's Avatar
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    We have been lucky enough to share this earth with our daughter 14 years ago yesterday! She was a pistol too, and was laughing a lot. I wonder if I will have to worry about her driving or not. I hope so.
    Happy Birthday to my Rachael.
    *Hug*
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  9. #519
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  10. #520
    Raspberry waffles Bob!!! kewlmoose's Avatar
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    Happy (1 day late) Birthday Rachael!

    Hang in there Roy!
    82 R65LS - gone but not forgotten
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    "Oh good, my dog found the chainsaw"
    "I finally got my head together, now my body is falling apart."

  11. #521
    Registered User Rapid_Roy's Avatar
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    Thank you bot very much.
    Merry Christmas to you and yours.
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  12. #522
    Registered User Rapid_Roy's Avatar
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    For those following, there is not much to add. She is doing ok, and we tried to wean her of the seizure meds. She must have been close to having them, as we forgot her meds on Easter and she had some small ones. She is now back on her full dose.
    We have been swimming in the pool, and she seems to like it, she squeals and kicks a lot.
    She also got her braces off last week, was fitted for a retainer that fell out instantly, so she got a new one this week Tuesday. She had eaten early last night, and I had got home late, so my wife and I were eating supper in the kitchen in full view of her.
    We heard choking sounds, and my wife went from 0 to holy **** in seconds and was in there removing the retainer she was choking on.
    Whoever thought straight teeth would be a life or death issue?


    We have dismissed the caregiver, she was adding more work to our lives, rather than removing it. We are interviewing with a new agency right now.

    So, we keep getting our reality checks, and don't have any time to cash them together. I have Hiawatha Rally this weekend, and my wife is going to Wendover with the girls next weekend. Sometimes, I would like a simpler life.
    19 BMWMOA Nationals under my belt, and I have no idea what I am doing.

  13. #523
    BMW MOV Muriel's Avatar
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    Roy, know that many others are thinking of you and your wife and your daughter - often. You have one hard row to hoe. And it would be very tiring to have to be on 100% alert at all times. Does your daughter have a dog that senses oncoming seizures? My neighbor's daughter has one, and it seems to heop alot. My neighbor is raising her daugher (now about 18) by herself; she is one brave woman. Bless you all,
    Muriel
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  14. #524
    Chromehead bobs98's Avatar
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    More thoughts and prayers coming your way, Roy!
    Bob Smith
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    '80 XS850 Special
    '05 Rocket III

  15. #525
    Registered User womanridge's Avatar
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    hugs to the Rapid's family. Best regards, Roy/ Enjoy Hiawatha.
    Karen Jacobs
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    MOA-133005, RA32109, IBA #37923

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